goin’ to shot-town USA

July 3, 2009

My drug of choice is Avonex. I’m not sure how helpful it is to document this process for other people suffering from this disease, but perhaps for my friends without MS who read this blog, it will be a helpful illustration of what I have to do once a week.

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various updates!

June 28, 2009

Sometimes, the need to have an actual blog topic makes it really hard to blog. So, I bring you a post of exciting miscellany and whatnot! Whoooo! So here goes: 1. I went on a long bike ride (30 miles!) yesterday in 75+ degree weather. Survived. Had lots of fun. Riding my bike is definitely [...]

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the faces of MS

May 27, 2009

It’s World MS Day! The folks at MSIF and the Hertie Foundation produced this beautiful short film to help spread the word about the faces of MS: From the YouTube description: This film is a joint project of the Multiple Sclerosis International Federation (MSIF) and the Hertie Foundation launched on the first ever World Multiple [...]

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feelin’ good

May 25, 2009

I’ve been sick for nearly a week now. Just regular, head-cold sick, though, with the stuffy head, runny nose and a lung-wracking cough added to the mix a couple days ago. The funny thing is–well, if there’s anything funny about being sick–is that my MS symptoms haven’t gotten worse these last few days. I totally [...]

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fight for my right … to date?

May 2, 2009

It’s been a while since I’ve checked the tinglyfeeling.com e-mail account, but I finally got around to it today. Mostly it was notifications about blog comments and new Twitter followers. I haven’t gotten around to checking everyone out and returning the follows; that’s on my to-do list. It’s just sort of hard to do in [...]

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is it the weather?

April 22, 2009

What effect does the weather have on Multiple Sclerosis symptoms?

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we’ve got spirit!

April 8, 2009

The Walk was soooo much fun. Our tent was just as I’d predicted/warned: a mix of 5th grade girl’s b-day party and the A-Team. Lots of streamers, balloons, sparkly stickers and prissy whatnot. We even won the Most Team Spirit award. Not sure how, exactly, but we did and we totally deserved it. Plus, it [...]

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well, most of us are walking

April 1, 2009

My sister told me yesterday, via Facebook IM, “… Say, I don’t know if I’ll be in Seattle for the walk, I might do it here in Marysville. But I do have a doctor’s appointment down there on April 30, so maybe we could get together….”

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Happy 1st MS-iversary to me!

March 26, 2009

The third MRI happened on Friday, March 26, 2008. The doctor called with the results that same night so I wouldn’t have to wait out the weekend. Twenty inactive lesions on my brain. “I hate having to give news like this,” he kept saying….

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the funny side of injections

March 19, 2009

Turns out, there’s a funny side to MS injections. Who knew, right? This dude, Paul, made a video about the 4 steps he takes before doing his interferon shot. HI-effing-LARIOUS. Seriously. I think I need to add watching this video to my own pre-shot routine. Completely refreshing to see someone take this approach to explaining [...]

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