tunneling

November 29, 2009

I sometimes think we progress through life as if we’re moving through a long series of tunnels. You don’t know where you’ll end up, but you hope it’s light and warm and safe when you get to the other end. And then you can move on to the next tunnel, with new possibilities waiting for [...]

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forgetting to remember

November 1, 2009

Can the cognitive loss caused by MS get so bad that you forget that you have something you’re supposed to remember? What good are lists and reminders if you don’t even know you need them? Will I someday forget to remember?

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rollercoaster

October 25, 2009

One thing I will never get used to with this disease is how suddenly everything changes. One day, you’re feeling okay, and then the next day, or even later the same day, BAM! Cruddy. It could be caused by a shift in the weather, stress levels, hormones, something I ate or drank, sleep patterns, or [...]

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mad props are in order

October 18, 2009

I’d like to take a moment to give a quick shout-out to my lovely and talented friends who took time out from their own busy lives to help make this blog possible. First, my good pal Bill, of Foundry Interactive, who did all the back-end whiz-banging (apologies for the technical jargon), development and set-up for [...]

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taking a time-out

October 15, 2009

I stayed home from work today. Sick, but not so sick that I can’t take advantage of the bonus time. I need to take wellness days more often, to recharge and regain my bearings. Time is such a swirl these days and with the holidays approaching–oh yes, they’re a-comin’ and fast–it’s only going to get [...]

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a post of profound importance

October 12, 2009

I’ve had blogger’s block for the last month. Not because there wasn’t anything to talk about–there’s too much. It was more like blogger’s bottleneck. I write blog posts in my head all the time, in the shower or while walking home from work, but I don’t get in front of a computer (at home, anyway) [...]

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health insurance reform rant

September 8, 2009

Can we get some health insurance reform up in here? Seriously. I just received the bill for my spinal and brain MRIs: $807.75. And that’s after my Aetna insurance plan (supposedly) paid 80%. What do people who can’t work because of their MS, or another condition that keeps them from having employer-provided health insurance, do?

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transitional-weather blues

August 31, 2009

So, I’m dreading fall. It means that the outdoor funtimes I’ve enjoyed during this SUPER AWESOME summer have to come to an end (I’m a fair-weather fun-haver). And, the yo-yo-ing temperatures mean that I’m probably going to be in pain a lot more often. It’s totally depressing. Like, for reals. Which is kind of a new wrinkle in this whole MS adventure. I don’t usually get and then stay depressed, but this glum feeling has been sticking with me longer than usual–and it’s not the right time of month for that.

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the special kind of tired

August 4, 2009

Wow, do I feel craptastic. I’ve got the full-meal-deal of fatigue going on. Burning muscles, aching bones, heavy limbs, slurred speech, etc. Good times. It hit me HARD at around 3pm today and hasn’t let up since. Normally, I’d just pass it off as the result of overdoing it–which is probably the case–but I just [...]

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seeing spots

July 18, 2009

Um, what are these? Maybe you can’t see them clearly, and I apologize for the wonky picture, but those little brownish spots? That look like freckles? Are not freckles. I don’t get freckles. Maybe moles, but not that many at once, suddenly appearing in one spot. I noticed them last Saturday and the first thought [...]

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