health insurance reform rant

September 8, 2009

Can we get some health insurance reform up in here? Seriously. I just received the bill for my spinal and brain MRIs: $807.75. And that’s after my Aetna insurance plan (supposedly) paid 80%. What do people who can’t work because of their MS, or another condition that keeps them from having employer-provided health insurance, do?

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transitional-weather blues

August 31, 2009

So, I’m dreading fall. It means that the outdoor funtimes I’ve enjoyed during this SUPER AWESOME summer have to come to an end (I’m a fair-weather fun-haver). And, the yo-yo-ing temperatures mean that I’m probably going to be in pain a lot more often. It’s totally depressing. Like, for reals. Which is kind of a new wrinkle in this whole MS adventure. I don’t usually get and then stay depressed, but this glum feeling has been sticking with me longer than usual–and it’s not the right time of month for that.

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the special kind of tired

August 4, 2009

Wow, do I feel craptastic. I’ve got the full-meal-deal of fatigue going on. Burning muscles, aching bones, heavy limbs, slurred speech, etc. Good times. It hit me HARD at around 3pm today and hasn’t let up since. Normally, I’d just pass it off as the result of overdoing it–which is probably the case–but I just [...]

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seeing spots

July 18, 2009

Um, what are these? Maybe you can’t see them clearly, and I apologize for the wonky picture, but those little brownish spots? That look like freckles? Are not freckles. I don’t get freckles. Maybe moles, but not that many at once, suddenly appearing in one spot. I noticed them last Saturday and the first thought [...]

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goin’ to shot-town USA

July 3, 2009

My drug of choice is Avonex. I’m not sure how helpful it is to document this process for other people suffering from this disease, but perhaps for my friends without MS who read this blog, it will be a helpful illustration of what I have to do once a week.

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various updates!

June 28, 2009

Sometimes, the need to have an actual blog topic makes it really hard to blog. So, I bring you a post of exciting miscellany and whatnot! Whoooo! So here goes: 1. I went on a long bike ride (30 miles!) yesterday in 75+ degree weather. Survived. Had lots of fun. Riding my bike is definitely [...]

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the faces of MS

May 27, 2009

It’s World MS Day! The folks at MSIF and the Hertie Foundation produced this beautiful short film to help spread the word about the faces of MS: From the YouTube description: This film is a joint project of the Multiple Sclerosis International Federation (MSIF) and the Hertie Foundation launched on the first ever World Multiple [...]

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feelin’ good

May 25, 2009

I’ve been sick for nearly a week now. Just regular, head-cold sick, though, with the stuffy head, runny nose and a lung-wracking cough added to the mix a couple days ago. The funny thing is–well, if there’s anything funny about being sick–is that my MS symptoms haven’t gotten worse these last few days. I totally [...]

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fight for my right … to date?

May 2, 2009

It’s been a while since I’ve checked the tinglyfeeling.com e-mail account, but I finally got around to it today. Mostly it was notifications about blog comments and new Twitter followers. I haven’t gotten around to checking everyone out and returning the follows; that’s on my to-do list. It’s just sort of hard to do in [...]

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is it the weather?

April 22, 2009

What effect does the weather have on Multiple Sclerosis symptoms?

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