of hamsters and hookworms

January 29, 2010

So I heard something crazy last week at my monthly MS support group. We were talking about drugs and why they’re so #*&^@! expensive. As usually happens at my support group, I learned things that I should probably already know. For instance: did you know that Rebif and Avonex, the latter of which I currently [...]

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happy new year

January 4, 2010

So as I approach my next personal temporal marker–my second anniversary of living with MS is in March–I realize that in terms of living with this disease, I’m a toddler. I’m just figuring out how my new world works. I don’t know what’s best for me. But I’ve learned a few things in my short life with this disease.

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group hug

December 16, 2009

I met with my MS support group tonight. There are about 5 or 6 of us who regularly attend our monthly meetings and it’s always good to check in with each other and hear what’s the what in the what what. I’ve learned a lot from these people. Mega hugs to them. I’ve been a [...]

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pain, here it comes again

December 14, 2009

So today, it’s rainy and 40-ish degrees, and I hurt all over. It’s a bone-deep hurt enveloping my whole body. It makes me want to scream. I’m just trying not to walk like Ozzie Osborne (SHARRRUUHN!).

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tunneling

November 29, 2009

I sometimes think we progress through life as if we’re moving through a long series of tunnels. You don’t know where you’ll end up, but you hope it’s light and warm and safe when you get to the other end. And then you can move on to the next tunnel, with new possibilities waiting for [...]

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forgetting to remember

November 1, 2009

Can the cognitive loss caused by MS get so bad that you forget that you have something you’re supposed to remember? What good are lists and reminders if you don’t even know you need them? Will I someday forget to remember?

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rollercoaster

October 25, 2009

One thing I will never get used to with this disease is how suddenly everything changes. One day, you’re feeling okay, and then the next day, or even later the same day, BAM! Cruddy. It could be caused by a shift in the weather, stress levels, hormones, something I ate or drank, sleep patterns, or [...]

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mad props are in order

October 18, 2009

I’d like to take a moment to give a quick shout-out to my lovely and talented friends who took time out from their own busy lives to help make this blog possible. First, my good pal Bill, of Foundry Interactive, who did all the back-end whiz-banging (apologies for the technical jargon), development and set-up for [...]

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taking a time-out

October 15, 2009

I stayed home from work today. Sick, but not so sick that I can’t take advantage of the bonus time. I need to take wellness days more often, to recharge and regain my bearings. Time is such a swirl these days and with the holidays approaching–oh yes, they’re a-comin’ and fast–it’s only going to get [...]

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a post of profound importance

October 12, 2009

I’ve had blogger’s block for the last month. Not because there wasn’t anything to talk about–there’s too much. It was more like blogger’s bottleneck. I write blog posts in my head all the time, in the shower or while walking home from work, but I don’t get in front of a computer (at home, anyway) [...]

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