group hug

by tinglyfeeling on December 16, 2009

I met with my MS support group tonight. There are about 5 or 6 of us who regularly attend our monthly meetings and it’s always good to check in with each other and hear what’s the what in the what what. I’ve learned a lot from these people. Mega hugs to them.

I’ve been a part of this group for about a year and a half now, I guess–almost as long as I’ve known about my MS. It started as a group for the newly diagnosed, but our Dx dates varied greatly, ranging from a few months to several years. At this point, “newly diagnosed” doesn’t really apply. We’re living the day-to-day lives of people with MS now–we’ve long since dealt with the initial devastation.

So we’ve sort of started to call it the “It Is What It Is” group. Not a very catchy title, but that phrase is certainly something that I’ve heard myself and others with MS–or anyone dealing with life’s cruel jokes–say so many times. Because, honestly, when you’re dealing with MS, there’s not a whole lot you can do to change it. You just have to roll with it. So the name fits.

Tonight, we did our usual round-robin status updates and chatted about our other off-topic interests–we all lead full, interesting lives, after all. Sometimes it’s better to talk about anything but MS. But it always comes back to that because even when we’re doing well (and, of course, that means different things to all of us), our MS is never too far from our minds. Multiple Sclerosis is a lurker.

Anyway, one of my group-mates, Mike, has been dealing with some pretty heavy regular-life stuff that’s piling on like an avalanche lately. Thankfully, his MS symptoms are more or less behaving themselves, but it sounds like the end of this year–and this decade–is putting his emotions to the test.

While he was talking tonight, I was reminded of the song “This Year,” by the Mountain Goats–its chorus (or is it a refrain?) has sort of been my mantra for the last few weeks: “I am gonna make it/through this year/if it kills me.” So, Mike, this one goes out to you….

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